Advice please!

[Sharone Stainforth]

Hi guys thanks for your replies so quickly. Just to let you know I have been to the doctor many times. I have had lots of blood tests and am now waiting for a specialist appointment at the hospital. The doctor thinks it could be ME or fibromyalgia. Which doesn't help really as alot of people see these conditions as beeing in your head! Trust me the pain is very real.
Do you think I should stop my son going too? Sorry the tech is quite drilled in at the moment and the last thing I want is him getting ill because of me stopping him going. Surely he has to have my permission though being under 18?

I have covered this somewhere before regarding ME, fibromyalgia is something different.

The trouble with this condition (ME) is that there is no difinitive test for it. There is something called the VPI test which when done is said to be the equivelent of what Myalgic encephamyalitis is.

Your doctor will need you to have had the symptoms for at least 6 months before they will do the various testing for ME. The main symptoms being chronic fatigue, not just tiredness, but overwhelming fatigue, like which you have never known before. Some liken it to climbing a mountain, only you are always climbing it, sheer exhaustion, that lasts. Aching limbs, chronic headaches, an aversion to sunlight ( I wore sunglasses for years, even when the sun was not shining) Loud noise was overwhelming and short term memory loss. These are but a few of the many symptoms I had, but not everyone gets all of them and not everyone is diagnosed with the same virus, which is why I think many Doctors once thought it was all in your head.

It is not in your head, it is a very real disease.

My own Doctor at the time, did not believe in ME and diagnosed me with Brucellosis. I later found out this was not so, and promptly changed Doctors.

As I believe Royal Prince Xenu pointed out, there is no specific cure. You have to learn to manage it, It can take a long time, to get it under control. You are constantly in fight or flight mode, or at least your immune system is. Someone has asked me via PM if I had recovered as they had never heard of anyone recovering from it. I am fully recovered as far as I am concerned. I would not be able to do the things that I can, if I wasn't. Will it ever come back, is probably a better question, and I can't answer that. I was told by my nurse and GP, a long time ago now, that there was always the possibility. So far, so good.

It's funny, one of the things that they reckon is a trigger is stress. How do you avoid stress in this modern world we live in? With a great deal of difficulty. Strangely enough things that used to stress me out, no longer do.

Which leads me to Scientology and their stress tests, it is designed to draw you in to their false world of promises, which they cannot deliver. Scientology can no more treat ME, than any other disease. In fact I should like to see a survey done to see how many scientologists or exscientologists have ME. Due to the overwork, stress, poor diet and suseptibility to increased pressure and anxiety, that in turn must leave their immune systems in poor shape, I would wager that there are a large proportion of chronic fatigue suffers in the scientology/exscientology community.

I'll try and find my post on recovery.

[Sharone Stainforth]

Thank you for your advice. I know it's about the money. I don't have anyway of getting money I have spent alot and owe alot too. I guess the next stage they are waiting for is my son is able to work to start paying money in. He would be like fresh credit to the reg.
I think that is the reason why they wont want us to go. Do i just ignore the phone calls or tell them straight that I don't wish to invovled any longer? I have already had calls today that I have not replied to. Surely there are some rights to be hassled by their calls after that we have?
Will my son be fine to end the auditing now? I know when I have had incomplete cycles of auditing I have felt very unstable.
thanks again for any replies

Read your last sentence;

Will my son be fine to end the auditing now? I know when I have had incomplete cycles of auditing I have felt very unstable.

I believe it is the auditing that is making you unstable.

[Disinfected]

Word to the wise.

If you have decided to quit, then break it off now and break it off clean while your son is still young. They will drag it on for years if you give them the chance and if you let it go too long, you may lose your son to them.

Talk to your son and find out if it would be OK for him to quit his co-audit now. Tell him you are taking a break from Scientology. Expand as needed. Talk to him and get his agreement before quitting. If he needs to finish something up first then wait a bit.

When ready, just quit and tell them "no more money, sorry". Refuse any offers to "handle" anything. Ignore any demands to go into the Church to "handle" anything. Ignore any "ethics conditions" or the like.

Be prepared to lose any connections that you may have with Scientologists. That is the price you have to be willing to pay. Might not come to that but you have to be willing or they have hold over you.

Make sure that your son becomes involved in a rewarding activity of his choosing. Martial arts, sports, music, whatever. Support him. Fill the void. You too.

Good luck.

[Tiger Lily]

As I believe Royal Prince Xenu pointed out, there is no specific cure. You have to learn to manage it, It can take a long time, to get it under control. You are constantly in fight or flight mode, or at least your immune system is. Someone has asked me via PM if I had recovered as they had never heard of anyone recovering from it. I am fully recovered as far as I am concerned. I would not be able to do the things that I can, if I wasn't. Will it ever come back, is probably a better question, and I can't answer that. I was told by my nurse and GP, a long time ago now, that there was always the possibility. So far, so good.

It's funny, one of the things that they reckon is a trigger is stress. How do you avoid stress in this modern world we live in? With a great deal of difficulty. Strangely enough things that used to stress me out, no longer do.

Which leads me to Scientology and their stress tests, it is designed to draw you in to their false world of promises, which they cannot deliver. Scientology can no more treat ME, than any other disease. In fact I should like to see a survey done to see how many scientologists or exscientologists have ME. Due to the overwork, stress, poor diet and suseptibility to increased pressure and anxiety, that in turn must leave their immune systems in poor shape, I would wager that there are a large proportion of chronic fatigue suffers in the scientology/exscientology community.

I'll try and find my post on recovery.

Thanks Sharone I pm'd just because I was afraid of derailing this thread, but this is fascinating. I've been surprised and how many exes seem to be dealing with this. . . I am also curious if the Scientologist lifestyle lends itself to this kind of illness.

If you find that post on how you recovered I'm very interested in reading it

-TL

[xyz1000]

Thank SHARONE for the info on ME. It has been a tough 6 months. I do get very tired. I resently just had a month off work as I just crashed I couldn't do very much at all. I couldn't even wash my own hair for around most of that time. Very hard when I have a child to care for to be in that situation. I have improved alot since then and am just back to work on reduced hours.

I think they are quite the same fibro and ME.Maybe the differance being ME is more tiring then the fibro, and the pain being the main problem in fibro. I am in alot of pain though (not so much now as have taken the meds the doctor has given me. But still very tired. and ache all over. Think I am just learning to live me it abit better now pacing ect. Got about seven weeks until the hospital appointment. Probably be more blood tests then. Glad it has gone for you and hope it stays gone too for you. It is horrible, horrible illness to live with, don't think words can explain it.

Disinfected ....... Good advice thanks I think I would be totally fine and there would not be a void. Just relief of not having to rush around at top speed trying to fit everything in. Will be nice to chill out and try and get well.
Not having to worry about the reg ringing every Weds for more money. My son has places to go to fill his time too. He does hang out with the other kids at the mission though so hopefully forgets this before to long. He goes fishing , plays football, attends a play club and a youth club so has lots of other friends.

Clamicide..... yes good thinking about the reg cycles that will follow if my son was to finish the course. He has wanted to the courses that he has done. I don't think he would be too bothered after awhile but at first he maybe a bit fed up with me. I have started to question it since seeing a tv programme a few months ago here in the UK. I was just sat in front on the Tv when it come on and couldn't believe what OTS were saying about the church. It kind of went on from there. Then I have been really ill and they keep on wanting me to go in and I just am, like get lost leave me alone but still dragged myself there. They couldnt understand and have even had me looking after 6 including mine kids while off sick. I have just had enough

Thanks to everyone you have all been a big help today. It helps to talk to people who understand as I don't think anyone else is going to understand me right now eg non scientology friends and family probably just say I told you so! So not what I need just now lol Big thanks again for helping me out today!!

[Sekh]

Glad to hear you are on the way to recovery and freedom. Take your time, don't rush yourself and your son. Think of you health first of all.

You'll only get better from here!

Sekh.

[Wisened One]

Hello this is my first post

(not sure if I am ok to post on here or not as I am still in scientology)

Well, depends on what you mean by 'if I am ok to post on here'. You KNOW that per Scn, it is NOT OK to post here (an anti-scn message board/website). But if you don't care about that, and wish to leave, then no worries!

I am looking for some help to be able to leave scientology. I have been involved as public for 8 years. Have had auditing up to grade 4. Recently since Oct 10 I have been very ill with alot of pain everywhere. I have been in and had assists ect but nothing has worked. For once I have been able to distance myself enough to rethink the whole deal. I really can not be bothered with the whole thing any more.

My problem is though that my son has also been having auditing for over a year now on a co audit. He is 13 and has been doing courses since he was 7!

I am due to go in tomorrow for a appointment to start yet another programme to help get me back on course. How can I handle this? I am a single Mum and am quite ill at present.Any advice would be a great help.
Thank you

GO see a real medical M.D doctor for your pain, asap! And simply do not return to the Mission or Org. That's the easiest way to leave scn.

Also do not return your son to receive anymore courses and auditing. It's that simple. Of course, your phone will start ringing and you may receive visits at your home, but I wouldn't answer any of these, personally. Or you could do so once, and that's it. Talking for any length of time to Scn's who are trying to 'recover' you will not get you (or them) anywhere and is a big waste of time on both ends.

[AnonyMary]

xyz1000, glad you found some help and good advise here. I can sense some relief in your last post. We're here for you! Keep reading the internet, post when you can and keep us posted

Mary

[SchwimmelPuckel]

About stress.. Being a scientologist.. It wasn't something I worried about at all. I didn't think 'stress' was 'applicable' to me..

But then I blew the Guardian's Office one day.. (for a host of other reasons than stress.) I took a day off wandering the town in the sunshine. Got home and disconnected the phone. Watched the first Space Shuttle land after the maiden flight. (It was on that day..) - Shortly after I got a WOG job that actually paid vages.

And something very nice happened! - When I went to sleep there was no stress. No emergency.. No worrry about making money enough.. Or get my stupid stats up.. No upset that CoS registrars would decide over my head what to use -all- my money for.. No worry that I may be an SP either. For if I was, then fuck it! - My business!

And thus I could sleep so much better and wake up rested!

[Voltaire's Child]

Yep. Better to leave now than let it drag on. I agree with that.

Don't let yourself get into any arguments with them. They tend to try to wear people down. Nagging, intimidation, all sorts of shit.